The day started with the fear that I was having a stroke, and ended happily, if you call it that, with the diagnosis that it was something I had never heard of called “Bell’s palsy.”
I have two reasons to be open and honest about my life.
One, it stands out in a digital culture that specializes in making people look better than they are, and secondly, it forces me to be candid about things I always used to hide – my mental and physical health, for one.
It’s still one of the hardest things for me to write about, so I know I have to do it.
My wild day began on Monday in my dentist’s office for my regular pre-scheduled cleaning. Ingrid, the receptionists looked strangely at me when I came up to say hello, but I didn’t think a thing of it.
I gave up looking in a mirror years ago.
The aide who cleans teeth looked at me and asked me if I was OK. She said my face looks different. She was alarmed.
She added that I had slurred some words, something Maria had mentioned. It was odd, but Maria insisted she drive me to the dentist, something she has never done. She just said she wanted to do some sketches and clear her head after a busy morning.
But she seemed uncharacteristically worried about me driving alone.
I said my eye had been dry and sometimes drippy, and one side of my mouth felt suddenly smaller than the other. My tooth was suddenly biting down on another tooth. I thought that part of the mouth was swollen.
The aide, – working with here is a pleasure – she said. She was uncomfortable working on the teeth, which surprised me, and she went to get Dr. Merryman, my very wonderful dentist.
He came in and said my face didn’t look right, and one side was different than the other. “I think you need to get to a hospital right away,” he said, “you may be having a stroke.” I laughed, “It sounds like you’re kicking me out,” I said, “I feel fine.”
But I wasn’t fine, it was just dawning on me.
“I am kicking you out,” he said, “and urging you to get to a hospital immediately.” Ingrid had already called Maria and asked her to come back from her walk, because they thought I needed to get to the hospital.
Maria came, and we got into the car and headed for Saratoga Hospital. When I mentioned stroke, nurses came out of the walls in seconds and got me sitting down and answering question after question.
Raising hands and arms, counting numbers, waving my arms, lifting my legs.
After a few minutes, the doctor said, “It’s not a stroke,” and walked away, saying, “I think you got Bell’s Palsy.”
Bell’s palsy is a temporary paralysis of the facial nerve, causing muscular weakness and some pain on one side of the face. Bell’s palsy is not a mini-stroke. It’s a virus.)
The doctors said they had given me test after test – of every part of the head and upper body – to make sure it wasn’t a stroke.
I was kept in the hospital for the rest of the day and the night until midnight, with Maria by my side. I had CT scans, blood work, heart tests, a movement rest, eye tests, and other tests. We were exhausted.
I don’t need to be pushed to love her, but I sure appreciated her on Monday; she was with me every second of the day, even though we were both exhausted.
Every person I saw said it was obvious that I did not have a stroke.
Every test of every part of my body reaffirmed that I did not have a stroke. But the doctors explained they had to be careful with strokes, especially with diabetics who also had heart disease.
I get that.
One tele doctor thousands of miles away – he had all of the arrogance and beligerance of many surgeons – said he looked at my test results and said I needed to stay two more days, it was possible, he said, because I had minor strokes earlier.
I refused any more tests – we butted heads – and said this was my decision, not his, and have a doctor I trust and listen, and if he suggested further tests, I’ll comply. Maria agreed with me. I said if my primary doctor wanted me to be tested, I would give it real thought.
I have a problem with doctors who tell me the medical decisions are mine, and then demand I do what they say. I don’t do well with snarky people, especially those diagnosing on a screen thousands of miles away without ever seeing me.
Anyway, it was a grueling and anxious day. I will have to curtail some of my writing for a while, but there is no reason at all to stop. I will continue my Pantry support posts and my flower art photos every day, unless my eye acts up and needs moisturizing and rest, which can happen for a while.
This is the challenge and fascination of aging for me; these questions of pills and tests make me more uncomfortable than I ever get. The medical machine is like a dinosaur; there is no simple way to deal with all of it the way many doctors wish, but I will do it the way I wish.
One step at a time, carefully each time, and then thoughtfully twice more.
It’s important at my age to take good care of myself; it’s also important to consider my own dignity, the demands on Maria, and my own sense of my body, which I know better than any physical I have met.
I understand I will have to make some changes; the technical medicines are never perfect. To me, it takes doctors and patients farther and farther away from one another all the time. Machines do the decision-making.
Any instinct will have to come from me.
Good medicine for me is not doing what I am told, but what a doctor and I figure out comfortably, respectfully, and honestly.
I asked Maria to take a photo of me this morning so you can all get a look at what it means, at least for a while.
It felt like the longest day. All around me, I saw people who had it much worse, and I gave thanks for my life.
Then, time to move along, massage my jaw, and get on with my life. It could be a lot worse, and it is pretty great as it is.
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Maria thinks, for some reason, I am handsome. I’ll have to take her word for it. This is my temporary new face. In almost all cases, it just gradually goes away. I can stand it if she can.
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So happy you’re going to be okay and no stroke!
Prayers for you Jon! My sister in law had Bells Palsy associated with Covid. She has recovered completely but did work for awhile with an OT to strengthen her facial muscles. She was getting ready for my nephew’s wedding and wanted to have the pictures look good- they did!
Was worried about both of you when there weren’t any posts from either of you since early yesterday. Not that you owe anyone an explanation when you don’t post but I’m sure I’m not alone in saying your blogs are the first and last thing I look forward to most days. Always gives me something beautiful to look at and reflect upon.
I had Bell’s Palsy because of Lyme Disease and even though I knew what it was, it was still scary.
Took an extra lap about the rosary needs today for both of you.
Thank you Chris, very much appreciated…
Not to be ‘pushy’ but my son-in-law got Bell’s Palsy from Lyme disease. Hopefully they checked for that too.
So T-H-A-N-K-F-U-L
Thanks to all that’s good in Heaven and Earth that you are both ok.
I’ve been praying since yesterday when you both dropped off the blogs.
Been checking for an update and hoping it wasn’t anything too serious.
The silence after Jon’s dream had me really afraid, but it’s ok now.
Blessing on you both and on all of Bedlam Farm.
I can imagine all the emotion that’s been flowing through you both, all the animals, and the farm itself.
Please take good care of yourselves (Jon and Maria too), you are so loved!
I’m so glad you are alright. I think about you often when looking at the photo of yours I purchased years ago in the coffee shop in Cambridge…called 4th of July Flowers, I think. Very “Wyeth-esque”.
I’m living in the ne Georgia mountains now.
Thank you for being so open and honest with all of us. I wish you a speedy recovery. BTW, you look wonderful!
I also was somewhat concerned when no morning post yesterday. I am SO relieved that you will recover well ultimately! How frightening yesterday must have been for you both! I had a good friend who developed Bell’s in the 7th month of her pregnancy 35 years ago so I am familiar with it….. may you recover steadily and feel better every day with no other problems. . Love and healing hugs to you and Maria both…….
Susan M.
So sorry you had to go through this Jon, but I’m glad it was not more serious. You look just fine!
Thanks I’ll be fine one thing about going to the hospital is that I see so many people who are so much worse than me..I keep skimmering the edge, I get better by the day thanks.
Sending my best healing wishes to you.
Take good care.
Edwina
We were out of town for several days, so was just catching up. So GLAD it turned out ok! Love the line about “ skimmering around the edges”…. at 83 I find that to be really true! ….here’s to more skimmering …
I had Bell’s Palsy 12 years ago. I noticed while having dinner that I couldn’t sip from my straw in my drink, I couldn’t seal my lips around the straw. My husband noticed the change in my face and we went immediately to the hospital. They considered stroke initially but after some tests and an overnight stay I was released from the hospital. You have to be careful with the eye dryness because your cornea can get scratched easily. I had to tape my eyelid shut at night to keep the eye moist. The nerve pain was intense at times but with medication and time it improved. I am sorry you are experiencing Bells, I hope you have a speedy recovery.
So glad to hear you are well. What a gift! Keep cherishing each other😘
Sending healing thoughts your way. Take good care and next to Maria.
I’ve had Bell’s Palsey TWICE. Once in my 20’s and again in my 40’s. I’m 83 and in okay good health. RA under control; lots of skin cancers under control; glaucoma under control. It’s day by day living life. Same as you, Jon!
We share the opinion about arrogant doctors. Jeez, “Who made you God?” and I say that with a couple of doctors in my immediate family — and they get love no matter what. Just not compliance. Jon, you’ve had me in your pocket since you did that carriage horse investigation. I’m lucky to know you through your work.
Good for you for being clear with doctors that you are the one who is ultimately responsible for making health decisions!! I’m glad that you have a doctor you trust and who trusts you and that you and your doc collaborate in making decisions. And I’m extra glad that you have Maria to support you in these health crises. Yay to both of you!! And I’m also glad that it turned out to be Bell’s palsy instead of a stroke. It’s annoying, but not life-threatening.
Sending you good vibes and well wishes.
In my prayers. Know and care about you through your dog books. It’s hard getting old but you have Maria and she needs to care for herself too. No one is immune from “surprises” as we age. Denial is not negotiable either. Take care. You look good. Rest and sleep.
Thanks Terri, Maria knows how to take care of herself. Read her blog if you want to see how, fullmoonfiberart.com.
Did you feel any sense of relief when you found out it wasn’t a stroke? That must have been such a long day.
Yes I did, quite a bit. The palsy is something I have to figure out..
Braeden was so worried when mom let us know. Thank you for writing about your experience. I was able to read it to him and reassure him that you were going to be ok. Please take good care and he looks forward to seeing you, Maria, and his animal family when you’re better.
Thanks again, please say hi to Braeden, we miss him when he doesnt come and its a wonder to see him handle the animals with skill and patience. We are very proud of him, I’m doing okay and we hope to see him next week, we also hope he’ll spend more time her helping us out…he’s very competent.